Join us for this one day online conference jointly organised by the Child & Adolescent Intellectual Disability Psychiatry Network (CAIDPN) and British Academy of Childhood Disability (BACD). The conference focuses on the physical health of children and young people with learning disabilities.
Learning Objectives:
- Understand and appreciate how physical health issues and barriers like diagnostic overshadowing result in the premature deaths of people with learning disabilities (LD)
- Learn practical approaches when assessing physical health issues in a child or young person with LD within a paediatric or mental health setting
- Learn practical approaches to reasonable adjustments and supports for children and young people with LD when they attend a paediatric inpatient setting
Booking
Sign up at this link or on the Book Now button at the top of the screen, and complete the form that follows. You’ll then receive an email confirmation and a link to the webinar, plus we’ll send you a calendar reminder nearer the time. Delegates will have exclusive access to recordings for 90 days after the event, together with slides. Plus you will get a personalised CPD/CME certificate via email.
- ACAMH Members MUST login to book onto the webinar in order to access this webinar and get a CPD/CME certificate
- Non-members this is a great time to join ACAMH, take a look at what we have to offer, and make the saving on these sessions
£50 for all
£5 for ACAMH Undergraduate/Master members
LMIC Members FREE
Don’t forget as a charity any surplus made is reinvested back as we work to our vision of ‘Sharing best evidence, improving practice’, and our mission to ‘Improve the mental health and wellbeing of young people aged 0-25’.
About the talks
Vicky Sleap – The National Child Mortality Database (NCMD) report ‘Learning from deaths: children with a learning disability and autistic children aged 4-17yrs’
This talk will summarise the findings of this important report which drew on data from the National Child Mortality Database (NCMD) to investigate deaths in children with a learning disability and autistic children, and to draw out learning and recommendations for service providers and policymakers. The report aimed to identify trends in child mortality among children and young people with a learning disability and autistic children, investigate factors associated with these deaths and identify common themes, to help inform policymakers, commissioners, those providing services to children and young people, and those involved in reviewing deaths of children and young people.
Dr. Hayley Crawford – Supporting the physical health and wellbeing of children with LD using the Behaviour Checklist and Annual Health Checks
This talk will present the findings of a 3 year research project to develop a checklist for parents and clinicians to use collaboratively, to help identify the causes of behaviours that challenge in children with a moderate-profound intellectual disability. Children with moderate-profound intellectual disability often have additional physical sensory, cognitive and/or social impairments that place them at high risk for behaviours that challenge, such as self-injurious, aggressive and destructive behaviours. A number of common causes of such behaviours are often overlooked. This can affect how quickly and effectively children are treated. The checklist is a list of things for parents and clinicians to systematically consider when thinking about behaviours that challenge to enhance assessment and treatment. The checklist can also be used over time to monitor causes and their ongoing impact. The talk will also cover a new research project focused on the uptake of Annual Health Checks to improve the health of young people with learning disability.
Dr. Kate Oulton – Supporting children and young people with LD in hospital
This talk will present clinical research findings on how we better support children and young people with LD attending paediatric hospitals.
Dr. Rebecca Gumm – A training intervention to improve staff communication with disabled children in hospital
This talk will present clinical research in the development, testing and delivery of a novel parent-inspired training intervention for hospital ward staff to improve communication with disabled children when inpatients.
Dr. Joanna Grace (Expert by Experience) – They cannot talk so how can I tell them what is going to happen? – Supporting people with Profound and Multiple Learning Disabilities to have positive experiences of healthcare.
People with profound and multiple learning disabilities frequently require medical interventions, yet they often undergo these experiences without knowing what will happen or why it is needed. This presentation invites professionals to reconsider the assumptions that shape such encounters. Drawing on Jo’s doctoral studies you will be invited to explore how an alternative understanding of personhood can enable us to meet people across the barriers presented by profound disability.
Communication remains one of the greatest challenges in supporting people with profound and multiple learning disabilities . Many individuals communicate through subtle embodied actions, sensory responses, or highly individualised behaviours that may not be immediately obvious to those who do not know them well. Time-pressured clinical settings can compound these challenges, limiting opportunities to connect in ways that truly honour a person’s identity and needs. Jo will explore simple sensory strategies that can be used in situ without great preparation or resources to orientate people to procedures. This session will explore how amplifying parental insights, integrating embodied communication practices, and reflecting on conceptions of personhood, professionals can offer healthcare experiences that are not only clinically sound but profoundly human. The aim of this presentation is to equip participants with practical strategies and new perspectives that support dignity, agency, and wellbeing for people with profound and multiple learning disabilities.
Learning outcomes
- Understand the vulnerability of people with profound and multiple learning disabilities and those who support them.
- Consider alternative conceptions of personhood and understand how these can facilitate connection.
- Gather ideas for sensory forms of communication that could be used to prepare people for experiences and used in the moment to support understanding.
- Begin to think about the responsibility to seek, support and amplify parental instincts.
Programme
09:15 Welcome – Dr. Heather Hanna (CAIDPN) and Dr. Catherine Tuffrey (BACD)
Morning Chair: Dr Ashley Liew (CAIDPN)
09:30 NCMD report ‘Learning from deaths: children with a learning disability and autistic children aged 4-17 years’ – Vicky Sleap, NCMD Deputy Director
10:00 Q&A
10:10 Supporting the physical health and wellbeing of children with LD using the Behaviour Checklist and Annual Health Checks – Dr Hayley Crawford, University of Warwick
10:40 Q&A
10:50 Break
11:10 Managing menstrual problems in young people with learning disability? – Dr. Rachael Viney, Sunderland Royal Hospital
11:40 Gastrointestinal issues in children and young people with LD – Dr. Camilla Salvestrini, Addenbrooke’s Hospital Cambridge
12:10 Panel Discussion
12:30 Lunch
Afternoon Chair: Dr. Amy Taylor (BACD)
13:30 Supporting children and young people with LD in hospital – Dr. Kate Oulton, Great Ormond Street Hospital
14:00 Q&A
14:10 A training intervention to improve staff communication with disabled children in hospital – Dr. Rebecca Gumm, Sheffield Children’s Hospital
14:40 Q&A
14:50 Break
15:10 Setting up and delivering a service to support children with LD in hospital – Joann Kiernan, formerly Alder Hey Children’s Hospital
15:40 They cannot talk so how can I tell them what is going to happen? Supporting people with Profound and Multiple Learning Disabilities to have positive experiences of healthcare – Joanna Grace, Expert by Experience
16:10 Panel Discussion
16:30 Closing and End
About the speakers
Vicky Sleap, Deputy Director of the NCMD. Vicky is one half of the Deputy Director role for National Child Mortality Database (NCMD). With 10 years’ practical experience in the field of child death reviews, she has used her in-depth knowledge to train paediatricians and police forces on the child death review process and influence that process at a national level. Notably, Vicky has contributed to the writing of revised legislation and new national statutory and operational guidance on child death reviews. Vicky has also acted as an international consultant, advising and assisting other countries in setting up child death review processes, and now frequently provides advice and support to child death professionals via webinars and conferences. Vicky is involved in ongoing collaboration with colleagues across a range of agencies including the National Crime Agency, Healthcare Safety Investigation Branch, MBRRACE-UK (Mother and Babies: Reducing the Risk through Audits and Confidential Enquiries across the UK), the British Association of Perinatal Medicine and the National Steering Group on Consanguinity and Genetic Risk.
Dr. Hayley Crawford, Associate Professor at Warwick Medical School. Hayley studied Psychology at the University of Birmingham and then completed an ESRC-funded Masters of Research Degree and PhD under the supervision of Prof. Chris Oliver at the Cerebra Centre, University of Birmingham. Her doctoral research investigated social cognition and social behaviour in children and adults with rare genetic syndromes associated with intellectual disability and was awarded the 2014 Patricia Howlin Lecture Prize by the Society for the Study of Behavioural Phenotypes. Following her PhD, Hayley was appointed as Assistant Professor at Coventry University where she led research into the identification of anxiety in individuals who are unable to self-report, as well as genetic markers for behavioural and mental health outcomes. In 2020, Hayley moved to University of Warwick where she leads the Neurodevelopmental Conditions Research @ WMS Lab which focusses on research into clinical outcomes for children and adults with neurodevelopmental conditions associated with intellectual disability. Hayley is a Specialist Advisor to the Fragile X Society and Co-Director of the Cerebra Network for Neurodevelopmental Disorders.
Dr. Kate Oulton, Great Ormond Street Hospital NHS Foundation Trust. Kate is a Senior Research Fellow and the Clinical Academic Programme Lead at The Centre for Outcomes and Experience Research in Children’s Health, Illness and Disability, Great Ormond Street Hospital (GOSH). Kate leads a programme of research focused on children and young people with neurodisability and those whose condition is rare or undiagnosed. Inclusion and equality underpin her work and she has a particular interest in using creative methods to engage families in the research process, particularly hard-to-reach groups. As the Clinical Academic Programme Lead, Kate aims to enhance the research culture at GOSH to make the clinical academic career pathway a more attractive choice for nurses and allied health professionals, ultimately leading to better engagement and interest in research and increased research capacity and capability.
Dr. Joanna Grace is a Sensory Engagement and Inclusion Specialist, author, researcher, trainer, TEDx speaker, and founder of The Sensory Projects. An autistic educator with experience teaching in special schools and fostering children with complex needs, she works nationally and internationally. Her doctorate examined identity and belonging for this population. Through The Sensory Projects she demonstrates how improvised resources and creativity can drive meaningful inclusion. In all she does she is working to contribute to a future where people are understood in spite of their differences. She is active across social media and welcomes new connections
Booking
Sign up at this link or on the Book Now button at the top of the screen, and complete the form that follows. You’ll then receive an email confirmation and a link to the webinar, plus we’ll send you a calendar reminder nearer the time. Delegates will have exclusive access to recordings for 90 days after the event, together with slides. Plus you will get a personalised CPD/CME certificate via email.
- ACAMH Members MUST login to book onto the webinar in order to access this webinar and get a CPD/CME certificate
- Non-members this is a great time to join ACAMH, take a look at what we have to offer, and make the saving on these sessions
£50 for all
£5 for ACAMH Undergraduate/Master members
LMIC Members FREE
Don’t forget as a charity any surplus made is reinvested back as we work to our vision of ‘Sharing best evidence, improving practice’, and our mission to ‘Improve the mental health and wellbeing of young people aged 0-25’.